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QUALITY OF LIFE

Patient-Centered Model

Description
The signs and symptoms of Angelman syndrome have been well-described, but the impact on the day to day life of families has not. What is it about having a family member with Angelman syndrome that changes life most profoundly? People with Angelman syndrome and their families are the only ones who can explain what kinds of treatments could bring the most benefit.

Behavior / Anxiety

Description
Behavior issues, such as aggression, irritabilty, self-harm, or manifestations of anxiety can interfere with normal life activities for families of persons with Angelman sydrome.